Resources for Families with Medically Complex Members – State Medicaid, Non-Profits, Family Caregiver Programs, & More
Navigating Medicaid private duty home health programs and family caregiver support options can feel overwhelming, especially when you’re caring for a medically complex child or loved one. Our Family Resource Center connects you with trusted state-by-state guidance, including paid parent caregiver programs, waiver information, advocacy organizations, and community support networks. Whether you’re searching for Medicaid home health services near you or exploring how to become a paid family caregiver, these carefully curated resources are designed to help families make confident, informed decisions.
Last updated May 12, 2026
Family LHA Program: Learn more about the Family LHA Program, serving families in Phoenix and the surrounding areas. Learn more here.
Local Resources:
- AHCCCS – Parents, guardians, and family members of Arizona Long Term Care System (ALTCS) Members who are under age 21 may be employed as a licensed health aid (LHA) and provide nursing related services to their qualifying relative
- DDD – The Division of Developmental Disabilities, through a contract with (AHCCCS), offers health coverage to members who are eligible for the Arizona Long Term Care System (ALTCS)
- LHA FAQs
- Encircle Families – helps parents and caregivers of children with disabilities so their whole family can thrive
Providing Private Duty Nursing to Californians in Need. As of today, there are no current Family CNA Program or Personal/Attendant Care Services updates.
Local Resources:
- Family resource Centers Network of California – Improving the lives of families of children with disabilities
- Family Voices of California – is a statewide collaborative of parent-run centers working to ensure quality health care for children and youth with special health care needs
- Disability Rights California – (DRC) is the agency designated under federal law to protect and advocate for the rights of Californians with disabilities
- CA Department of Developmental Services (DDS) – provides support for Californians with intellectual and developmental disabilities and their families to live the life of their choosing in their communities
- MyMedi-Cal – How to get the Health Care You Need
Family CNA: The Family CNA Program is fully up a wonderful resource for families in Colorado who qualify, learn more here.
Personal/Attendant Care Update: Team Select Home Care is proud to offer its IHSS Program, learn more here.
Local Resources:
- Family Voices of Colorado – Speaking on behalf of Children and Youth with special health care needs
- The Resource Exchange – Advocating for independence and inclusion, TRE partners with children and adults who have a variety of disabilities, delays, mental health or long-term care needs
- PEAK Parent Center – Provides training, information and technical assistance to equip families of children birth through twenty-six including all disability labels with strategies to advocate successfully for their children
- Disability Law Colorado – using a wide range of tools to enable Coloradans with disabilities to thrive
- Connect for Health Colorado – Colorado’s official health insurance marketplace
- Colorado Medicaid – administering Health First Colorado (Colorado’s Medicaid Program), Child Health Plan Plush, and other health care programs
- CO Department of Health Care Policy and Financing – Long-Term Services and Support Programs
- Colorado PEAK – the place to apply for and manage medical, SNAP, cash or other State of Colorado benefits
- Colorado Department of Human Services – provides assistance, resources and support for Coloradans
- Colorado Access: Serving local Colorado communities with access to affordable and quality care for over 30 years
Family CNA Update: The Family CNA Program is live (called the Florida Family Home Health Aid Program). Some state regulations still need to be adjusted (income disregard and training requirements need to be fixed). AHCA is implementing the changes and is awaiting CMS approval.
Local Resources:
- Family Network on Disabilities – Florida’s resource for helping families of children with disabilities
- Disability Rights Florida – Protecting the civil rights of people with disabilities in Florida
- Family Care Council – Educating individuals with developmental disabilities and their families about services and resources in Florida that may assist them with living meaningful and integrated lives in their community
- ADP – Agency for personas with disabilities in the state of Florida
- AHCA-MyFlorida – Florida Medicaid program
Resources for Georgia families with medically complex children and adults.
- Georgia Medicaid Waiver Programs
- Elderly and Disabled Waiver Program – formerly called the Community Care Services Program (CCPS), provides in-home and community-based services as an alternative to a nursing home
- The Katie Beckett Medicaid Program – provides benefits to certain children 18 and under who qualify as disabled individuals and who live at home rather than in an institution
Family CNA Update: The Family CNA Program (unskilled only) in HB 4178 (2024) was passed. (HB 3475/SB 2434), which was passed for a full program in 2025. Each piece of legislation is being implemented by HFS.
Local Resources:
- Equip for Equality – Advancing the human and civil rights of people with disabilities in Illinois
- Access Living – Chicago based agency helping people with disabilities live the lives they choose
- The Arc – Illinois Family to Family health information center
- Illinois Healthcare & Family Services – People who are medically fragile, technology dependent waiver
Family HHA and Personal/Attendant Care Update: Family HHA and Attendant Care services under the Health and Wellness Waiver and Pathways for seniors for attendant care services. Parents and family members are allowed to provide attendant care under the H and W waiver if the child is under the age of 21. Spouse can provide paid caregiving if the individual is 65 and older on the Pathways Waiver
Local Resources:
- Indiana Family to Family – Providing answers, resources, practical training, and vital community connections
- The Arc Indiana – empowers families with information and resources to assist them in their journey of raising a child with a disability to lead to a full and meaningful life
- Indiana Disability Rights – working to uphold, promote and advance the rights of individuals with disabilities
- Indiana Medicaid for Members – Aged and Disabled Waiver
Resources for Families
Family Complex Care Assistant Services (CCA) Program: The CCA program is up and running.
Infection Control
- Centers for Disease Control and Prevention
- Key Facts About Influenza (Flu) | CDC
- RSV (Respiratory Syncytial Virus) | CDC
- Coronavirus Disease 2019 (COVID-19) | CDC
Local Health Organizations
- Boston Children’s Hospital
- Massachusetts General Hospital
- Shriners Children’s Boston
- Franciscan Children’s
- Spaulding Rehab
DME
Support Groups
- Mass Family Ties
- Division for Children & Youth with Special Health Needs
- Massachusetts Advocates for Children
State Resources
Community Activities and Support
Other Family Resources
Resources for Families of Children with Special Needs
Government Agencies and Services
- MassHealth
- Community Case Management
- Enhanced Coordination of Benefits
- Independent Living Centers
- Mass. Dept. of Public Health
- DPH MASSTART
- DPH Pediatric Palliative Care Program
- DPH Catastrophic Illness in Children Relief Fund
- Mass. Dept. of Developmental Services (DDS)
- DDS Autism Support Centers
- Mass. Dept. of Mental Health
Community Based Organizations
- The Play Brigade
- Courageous Parents Network
- Arc of Massachusetts
- AANE, Asperger/Autism Network
- Autism Speaks
- Disability Law Center
- Family TIES of Massachusetts
- Mass. Advocates for Children
- Mass. Association of Approved Private Schools (MAAPS)
- Mass. Organization of Educational Collaboratives
- MassFamilies
- Parent/Professional Advocacy League, PPAL
- SPEDCHILDMASS
- Smile Mass
Specialized Services
Music Therapist
Resources coming soon!
Family CNA Update: Missouri Medicaid is considering the Family CNA Program model. Stay tuned for more updates – Team Select Home Care will continue to review.
Local Resources:
Family CNA Update: The Family LNA Program is fully up and running for families in New Hampshire, learn more here.
Local Resources:
Resources coming soon!
Resources coming soon!
Family CNA Update: The Family HHA Program is fully up and running for families in Pennsylvania, learn more here. Legislation is currently pending in the PA House and Senate that would enact a Family CCA program to allow parents and family members to provide skilled tasks to their loved ones, like tube feedings and medication administration.
Personal/Attendant Care Update: Team Select Home Care is proud to offer Personal Care Services, learn more here.
Local Resources:
Family CNA Update: Team Select will have a legislative sponsor in the next legislative session in 2027 to ask the legislature and Governor to pass and enact a Family Complex Care Assistant.
Local Resources:
Resources coming soon!