Down Syndrome: Empowering Parents with Life Tips
In recognition of World Down Syndrome Day this month, Team Select has crafted an informational blog filled with encouragement and resources for parents of children with Down syndrome.
Your child was just diagnosed with Down syndrome. Now what?
While there is no correct answer, educating yourself and your loved ones about Down Syndrome is essential, and researching what life might look like as a family with unique needs is important.
Helpful resources include:
- CDC – Facts about Down Syndrome
- National Down Syndrome Society – About Down Syndrome
- National Down Syndrome Society – Resources
- National Down Syndrome Congress – Local and National Support Networks
Some of the resources above include parenting tips for Down Syndrome and community resources, offering a better understanding of the diagnosis.
Connect with others living with Down syndrome.
Connecting with other families and parents of children with Down Syndrome can benefit all your family members. It provides a sense of community and support that can help you, as a parent, navigate the challenges of raising a child with Down Syndrome. Parents can share experiences and advice, learn about resources and services, and celebrate their children’s achievements together.
Celebrate children with Down syndrome and continue supporting your child’s achievements.
You are your child’s most prominent advocate and supporter; we genuinely mean it!
As a parent of a child or children with Down Syndrome, there may be days when you feel exhausted and overwhelmed by the difficulties that come with caring for your special needs child. However, it’s crucial to keep celebrating your child’s accomplishments.
Every milestone, whether learning a new word or discovering a unique social situation, deserves to be honored and celebrated. By celebrating these achievements, you boost your child’s self-esteem and create a positive environment that encourages them to keep growing as an individual living with Down syndrome.
Remember, being a parent of a child with Down Syndrome may have challenges, but it’s also gratifying!
Continue to be an advocate!
As one of our parenting tips for Down Syndrome, we encourage parents to continue advocating for their loved ones with special needs!
Advocacy looks different for everyone but can include:
- Ensure your child receives early intervention services, such as physical therapy, speech therapy, and occupational therapy. These therapy appointments and early intervention services can help your child reach their fullest potential.
- Work with your child’s school to ensure they receive the proper education and academic support.
Collaborate with advocacy organizations sharing your family’s story and working closely with other community members to raise awareness for Down syndrome.
Remember to take care of yourself as a parent.
Self-care isn’t selfish! In fact – it’s crucial. It’s vital for parents of children with disabilities. Raising a child with special needs can be challenging and demanding and it can take a toll on a parent’s well-being. Self-care activities may include:
- Going on a walk
- Socializing with your friends or community members
- Spending time outside in the sunshine
- Spa day
- Reading a good book
- Watching your favorite T.V. show
Some benefits of self-care include stress reduction, a boost of self-esteem and mood, and increased resilience while preventing burnout.
How Team Select can help parents of children with Down syndrome.
Team Select Home Care provides both Long-Term Care and Pediatric Therapy for children with Down Syndrome. Our Long-Term In-Home Services Include (but are not limited to):
- Continuous Hourly Nursing
- Respite Nursing Care
- Tracheostomy Care
- Enteral Tube Feedings and Therapy
Our Pediatric Therapy In-Home Services Include:
- Physical Therapy
- Speech Therapy
- Occupational Therapy
Learn how Team Select can help provide care for your family today.