Living With Down Syndrome
What does Down syndrome mean to you? In recognition of Down Syndrome Awareness Month, Team Select is highlighting what it means for families and individuals living with Down syndrome.
What is Down syndrome?
According to the Mayo Clinic, “Down syndrome is a genetic disorder caused when abnormal cell division results in an extra full or partial copy of chromosome 21. This extra genetic material causes the developmental changes and physical features of Down syndrome.”
Individuals living with Down syndrome commonly share physical attributes like a flattened face and almond-shaped eyes. Individuals living with Down syndrome also have a higher risk of developing Alzheimer’s disease and are commonly born with additional health complications impacting their hearts, lungs, and other organs.
“Most children with Down syndrome have some level of intellectual disability ⎯ usually in the mild to moderate range. People with mild intellectual disability are usually able to learn how to do everyday things like read, hold a job, and take public transportation on their own. People with moderate intellectual disability usually need more support.” – Boston Children’s Hospital
What does care for a child with Down syndrome require?
Firstly, love. Caring for a child with Down syndrome may have its own obstacles but it is always important to remember that they are human too.
Down syndrome can be diagnosed while the child is still in the womb through a Prenatal test but can also be diagnosed after the child is born with the help of a rapid blood test and karyotype blood test.
Similar to caring for any child or individual with a disability, everyday life may look a little different. Individuals living with Down syndrome may require physical and behavioral therapies, educational therapy, and some type of care for the longevity of their lives.
“In 1960, on average, persons with Down syndrome lived to be about 10 years old. In 2007, on average, persons with Down syndrome lived to be about 47 years old. Many factors can affect how long a person with Down syndrome lives.” – CDC
How can you get involved during Down Syndrome Awareness Month?
With so many ways to get involved, Team Select is here to make advocating easy!
- Donate to a local or national charity supporting individuals living with Down syndrome
- Become an advocate by visiting www.worlddownsyndromeday.org/world-down-syndrome-advocates
- Share what Down syndrome means to you on social media or with friends and family close
- Spread the word by staying informed and helping educate others about Down syndrome
- Attend an event in support of Down syndrome
All of the above are great ways to get involved! Visit www.worlddownsyndromeday.org/take-action for more ways to act.
How is Team Select supporting individuals living with Down syndrome?
Team Select’s in-home Long-Term Adult and Pediatric Care help provide our patients with a sense of independence and comfort designed to promote healthy, happy healing and continuity of care from the comfort of their homes. With a family-centered approach, our caring team is with you every step of the way.
Long-Term Adult & Pediatric Care Services
- Continuous Hourly Nursing
- Respite Nursing Care
- Development Disabilities
- Tracheostomy Care
- Preemie Transitional Care
- 24/7 On-Call Service
- Nursing for Ventilator Dependent Pediatrics
Pediatric Therapy Services
- Physical Therapy
- Speech Therapy
- Occupational Therapy